We covet your prayers that we will have wisdom tomorrow to explain the situation and the doctors will have understanding and wisdom to address it. Really the only One Who knows what is going on exactly is the Great Physician and we know how to speak directly with Him. We also know that He can give wisdom and understanding where it is needed. We hope to see a change for her this week for the better. We have no reason to believe we won’t do the infusion this week. Because she’s only had one we can’t yet determine that the problem is caused by that or that she won’t work through it and emerge stronger on the other side. It obviously was God’s will for her to begin them so we won’t stop them unless we see His hand clearly as well. I know we all hoped that she would just feel better and better after the infusion but that’s why I’ve taken this week to adjust my expectations and learn to rest again in God’s protection of Joyanna.
Philip has done pretty well this week without a lot of vomiting and really bad congestion. We are one step closer to private duty nursing for him. We had the insurance evaluation by the case manager this last week. I’m still hopeful we’ll hear something by the end of July but that’s this week basically.
So, I’ll be on the phone A LOT tomorrow, calling and receiving calls back. I will try to let you know how the week progresses.
Thank you for praying for us!