At the same time, Philip has had very good days. We think this is due to his raise in medication. On Thursday, he even sat on the floor for an hour and a half (with pillows around him) and played with toys. He was able to scoot himself in a circle while sitting. I actually thought we might never get to see that again. It was a blessing! We got him laughing last night by playing peekaboo. He really enjoyed it and we did, too.
We’re still waiting on results from genetic testing. That’s all we can do is wait. We do know that God’s timing is perfect though. His grace provides strength daily.
Pray for continued seizure control for Joyanna without cognitive side effects. Pray for good days for Philip, which would include swallowing safely and eating efficiently, no weight loss or aspiration. Pray for strength and peace for Ben and I and wisdom to help each of our children with their very different needs.