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Thanksgiving! What a state of mind I am seeking to make my daily habit. I have been thinking about this so often lately. We are so blessed! As a group, our society is so blessed. If we could transplant ourselves to any other century or to many other places in the world today, we would only have a fraction of what we have at our fingertips here. And yet, it is so easy to slide into a spirit of complaining or wanting more. What’s more, the spirit of entitlement is pretty prevalent as well.
Even in our situation, we have been blessed with medical care, health insurance, financial needs met, flexibility of my husband’s job, medical equipment that helps our children, medicines to make them comfortable, a house that meets our needs, a van that meets our needs, and I could go on and on. I can’t even imagine what it would be like to be in a developing country with the same medical conditions my children have. And there are people in those countries who deal with similar things that I do without nearly the resources I have. I think I’ve said it before, “There is always, always, always something to be thankful for.” There really is.
We enjoyed time with family and friends yesterday. My sister here in town hosted the Thanksgiving dinner this year. It was a good time with lots and lots to eat. We’ll meet with Ben’s brother, Mitchell and sister, Abigail and families today. Tonight we’re planning to take in one of the area Christmas lights displays. It’s the most wonderful time of the year! My husband has already put up our Christmas lights outside and Joyanna and Ethan have enjoyed them so much. I can’t wait to see them enjoy the lights display tonight.
Philip is doing okay. We have continued to increase his medication and be aggressive about it. He is still having more small seizures and tremors than we would like for him to be having. We have a week and a half of increasing still and then we will re-evaluate. He has been happy again a couple of times so I think that’s a good sign. Otherwise, he is doing well.
Joyanna is not doing as well as we would like her to be. We are still waiting for the medicine transitions we made for her to take full effect and we will re-evaluate as well. She is still very unsteady and her words are harder to come by. We aren’t really having many behavioral problems though. Please pray for the wisdom to make the right choices in both of their medicines.
Please continue to pray for the FDA to approve the enzyme replacement for Joyanna. Personally, I am praying for the beginning of 2017 for it to be ready. I know that whatever the Lord’s will is will be the best but I know that he wants us to ask Him for things as long as we pray according to His will. I know that if the Lord wants it to happen then, there is no red tape strong enough to hold it back.
Thanks for your prayers for us! I hope you enjoy the season that is here! People think about Christ more at this time of year so let’s remind people that He chose to come as a baby so He could die on a cross to take the punishment for our sins.