The Lord took care of rearranging things for me on the worst day of my cold and both of Joyanna’s therapists were out so we didn’t have to manage an outside appointment on top of everything else. That said, we didn’t get her iPad. There’s always this week, maybe! She’s had some pretty good days lately. Such a blessing! We don’t really expect an update on Brineura until the end of April.
Philip managed a few smiles because of the cold he had so those are always a special gift! Still no word if insurance will cover tetrabenazine for him. Still waiting. He’s out for spring break after this week. Spring break for OKC public schools is 2 weeks. It’s almost spring break! Zoom, goes 2017. Live in today, because it seems tomorrow is going to be here really quickly!
Thank you for your prayers for every one of our days! God is answering them by strengthening, giving grace and carrying us through.