Our church had their Ladies Retreat over the weekend and it was a joy and blessing to be able to go. I was speaking with a friend and realized exactly what I was looking forward to besides the fellowship with other ladies, good Bible lessons, etc. I call it "brain rest." I knew for 24 hours my mind wouldn't be continually searching for who needed something next. Ex: "Why is Ethan fussy? What does Philip need? What is Joyanna doing now? Why isn't the washer running anymore?" :) For all you ladies, you know how it is. Our brains do that all the time. But once I left the house, I knew they were well taken care of, (If you've seen my husband with our kids, you know what I'm talking about. He's a great daddy and very capable over all to handle things at home.) and that I could let my brain rest! It was great. I didn't sleep very well the night of retreat because new place, different bed, etc. but I was able to focus on the retreat and learning about being a Daughter of the Almighty. That was our theme! I was refreshed in my spirit and soul and then it's easier to come back and live with renewed purpose and energy.
I am expecting a call from Philip's dietician today or tomorrow. We will hopefully make one last change if we can. She was going to consult with Mary Susan, the dietician from Dallas with more years of experience with keto diet kids. We'll see what the next step is. I did make one little change that I can make over last week and it has made Philip function a little better. He made it through the entire church service last night, something he has done only one other time for at least a month. For most of the morning this morning, he played well and we didn't have a lot of screaming or fits.
I think the progress over all is still there but slow. Last Thursday, he pulled to standing on the pack 'n play. He did that all alone while I had stepped to another room and was standing there when I got back. He couldn't get down so he was hanging on for dear life but he got up so that's a good step and still shows initiative on his part and even muscle strength he didn't really have a couple of months ago.
Even though his words are limited again, he is still trying to sing since that time a month or so ago. I like that willingness in his spirit. Mostly, when he's trying, he just oooohs and tries a few pitches along with a song. I hope he keeps that up and that we see progress there. I'm not really getting a lot of smiles out of him these days but we hope to soon.
Please pray for him this week without school and many chances to go bye-bye. We like the slower weeks but I think he likes any chance to get out of the house. I wouldn't call him a homebody. :)
Thanks to those of you who check often to see how we are doing. I'm sorry I can't update more often. Thanks, most of all, for your prayers. God hears them and we definitely appreciate them.