I have to start by admitting contrary to my former post. I thought it had been one week since I posted not over two weeks. And I'm sure many of you, given my last post, thought things were going horribly. Thankfully, this time, that is not the case. Things have not been bad just busy. It seems every day during naptime (when I normally post) the time just flies by. Then all my little ones are awake and writing anything is out of the option.
Today I knew I had to make it happen. While I appreciate your extra prayers, I had to let you know that things are going okay. We've kind of settled into a level plane for the last couple of weeks, medically speaking.
We haven't been to the ER in two months. Joyanna is continuing to do well with no large seizures and still seeming to progress in some skills. Philip has adapted well to his new medicine and it seems to have taken care of the tremor. We are so thankful for this. He seems pretty content on most days and we still see smiles and laughs every once in while. All of our allergies seem to be under control.
Philip is struggling with his sleep schedule. He now wants to sleep hard during the day and wake up for half of the night. We are praying about how to address this. Please pray with us for wisdom and for his body to respond on a more normal schedule. The thing is--he is not upset when waking up at night. He is very quiet so he doesn't wake me up. I get up and check on him but we have found it's not that easy to get him back to sleep if he's not ready to go to sleep. Mostly, I have just prayed that God will give wisdom but ultimately, to take care of giving Philip the sleep he needs and allow me to leave the "rest" :) in His hands. We're planning to work on shortening his day time nap and hopefully that will help. Feedings are going really well. He gained almost 5 pounds since last month. That's good for him right now but he can't continue to gain at that rate. It won't be healthy for him and I will add that I still need to carry him around. I can tell the difference even with a 5 pound gain.
He said, "Hey," a couple of times last night when our friends, Jeff, Pam & Victoria Copes were over at the house. Bro. Copes got him to say it when talking to him. He had some good smiles too. Last week, we were listening to the kids's song, Joy in My Heart, in the van and he said, "Where?" out of the middle of nowhere. We were thrilled. It's just fun to hear when he manages to get the word out he's trying so hard to say. The neat thing now for me to see is God's grace on him is so obvious. He is rarely upset anymore and we enjoy the smiles when he can make them happen. It's just more confirmation to my heart that God is really taking care of all of us. Thanks for praying for him and all of us.
God Will Take Care of You
- Be not dismayed whate’er betide,
God will take care of you;
Beneath His wings of love abide,
God will take care of you.- Refrain:
God will take care of you,
Through every day, o’er all the way;
He will take care of you,
God will take care of you.
- Refrain:
- Through days of toil when heart doth fail,
God will take care of you;
When dangers fierce your path assail,
God will take care of you. - All you may need He will provide,
God will take care of you;
Nothing you ask will be denied,
God will take care of you. - No matter what may be the test,
God will take care of you;
Lean, weary one, upon His breast,
God will take care of you.