We still don't know why the seizures stopped. We thought it would be the fact that he wasn't eating. However, except for a couple of days, I kept Philip's diet the same as I possibly could so we could see the difference. As far as I know, comparing last year's flu and this year's, the only two things the same were the flu virus itself and Tamiflu. Since that doctor assured me the flu wasn't a cure for epilepsy :), I'm thinking it must be Tamiflu. Dr. Herren is checking into it. It would be really neat to find out if Tamiflu could be developed into a seizure medication. I don't know all the pharmaceutical information but I've heard of other medications that were found to have multiple uses.
Joyanna did come down with the flu on Sunday night. She is doing well though. She had a couple of tough days but is rebounding nicely now.
In discussing these transitions with Philip's doctor, she made me aware that one of the doctors from Johns Hopkins keto diet program is coming to OKC. We were thrilled to hear he will be giving a lecture to caregivers. We are very excited to attend, Lord willing. Then, yesterday, when we spoke again, she told me that this doctor offered to see a few patients in the clinic while he was here. She made that option available to us and of course, I enthusiastically agreed. Philip is the only patient of Dr. Herren that hasn't "behaved" on the keto diet. She said we could share our observations with him and "pick his brain". I am sure he has so much experience. Johns Hopkins is where people with difficult cases go for a second (or third or fourth) opinion from the best doctors. Essentially, this man is a leading doctor in epilepsy and the ketogenic diet. His name is Dr. Kossoff. Click here to read about him. Please pray that we can be thorough in discussing Philip's case with him and that the Lord will give him wisdom to help us. This is an exciting opportunity.
Pray that all of these transitions will end smoothly and that the Lord would give us wisdom about his seizure medication, whether to leave it the same or go back to the dosage he was at two weeks ago.
I haven't forgotten about sharing what the Lord has showed me. He just hasn't showed me a lot of time to share it. :)