Philip has had three good days in a row. It is such a blessing when that happens. He has been happy and moving around a little more. He was able to use some words. He started out Friday night having a good time "beating up" Uncle Drew. He was laughing and smiling. His word for Friday night was 'zero'. He seems to latch onto one word in a setting. Saturday evening he scooted around our front living room throwing nerf-type basketballs and chasing them. Sunday, he made it through the day with no fits and although he didn't make it through the evening service, it was because he wanted to talk, not because he was crying or upset. Today, he came home from school happy and woke up from his nap happy and played in our play area instead of sitting on the couch. Praise the Lord for good days!
We decreased one of his medications by one dose on Saturday. We had been talking to his doctor about this and had agreed to wait until after the holidays. Usually, when Philip changes a medication, he is like an addict in withdrawal. That's why these past two days especially have been amazing because we haven't seen that side effect yet. It could happen tomorrow but we'll take that when it comes and just be thankful for an easy transition if it continues this way. I am once again watching closely because I need to know if this med change is causing a seizure increase. We want him to be on the least dosage possible but of course, not jeopardize his current seizure control. It's a hard balance to find.
Please pray his seizures don't increase and that we do truly have an easy transition. Please pray that his new glasses near the end of the week will help him see better. Praise the Lord with us for three good days in a row.