I am now fully prepared to deal with vomiting on a regular basis. I hope that is not the case. It would be great to see him get to higher levels so he doesn't come out of ketosis so easily or great to think he won't get sick any time soon again but without guarantees, I'll just plan on receiving his calling card. At least now we know how to deal with it and get him back to normal in an expeditious way. I also know to trust my intuition on dropping levels and seizure behavior and I'll try not to send him back to school to let his teacher deal with the transition. It's easier to deal with at home anyway.
I didn't get to share my story from the weekend before this happened, so I'll share it now. It was so wonderful! Philip just did better and better at talking all last week. His therapists noticed; his teacher noticed without us asking. It was a great encouragement. Saturday evening is mostly preparation for Sunday so I do all the baths Saturday evening and lay out all the clothes and get the diaper bags ready, etc. I have had a tradition since Philip was very little when I get him out of the bath tub. I wrap him in his towel and rock him and sing a song-one of his favorites usually but I have about 4-5 I rotate through at bath time. When he was little, I could hold him in my arms but now I just hug him to me and rock him back and forth and sing. Saturday evening, I chose to sing Ron Hamilton's "I Love You, Lord," one of our bath time regulars. Then, I carried him to his room and put his pajamas on. When I sat him up, he started to actually try to sing a melody and I could tell he was trying to sing the words to "I Love You, Lord." It was so sweet! I'm not sure you would've known what he was trying to do but this momma knows. I started to cry right away and I pulled him into my lap and hugged him. I haven't heard him try to sing in over a year. I told him that Jesus loved to hear that song and Mommy did, too. He was very happy that I knew what he was doing. He just beamed.
That story makes me able to endure vomiting over and over again. I'm sure you would, too. With the chance that my little boy can sing again, I'd do almost anything. By the way, he tried to sing a couple more times on Sunday until he ended up getting the cold. I'm looking forward to more songs this week. If he is going back into ketosis and I believe he is, we should see more progress.
Please still pray for stronger ketosis and no more sickness. I happen to think that last one will be a miracle since we are heading into the sickness season and he has two younger siblings but my God is very capable of miracles.