Philip is once again having some days where he is agitated most of the day. If we do leave the house, that's his bright spot. He likes to go bye-bye. He's not wanting to drink at all right now. Please pray for that.
Please pray for the logistics to be worked out. We looked up the Epilepsy Monitoring Unit (EMU) on the CMC Dallas website and it looks like there is a full bed in each room so we won't have the added expense of a hotel room for the week. We can stay right in the room with Philip. That's a blessing. We'll leave the two other kids here in OKC.
Please pray for the 2-3 miracle. We know God can work outside of that but He does want us to ask Him. To summarize, if you haven't read that post.
2-3 Miracle Best case scenario:
2-3 days, seizure free
2-3 months, wean off medication
2-3 years, wean off diet and return to normal diet, no seizures
Thanks for continuing on the journey with us. Thanks for praying for us through many days. May God bless you for it, for we'll never be able to repay you this side of heaven.