I forget the feeling I have when she moves in. I'm her primary caregiver and others will not care for her in the exact same way that I do. I just have to get adjusted to that concept and that it is okay. They are not big issues, just the way people do things differently. Really, it shows up in this environment because every 12 hours there is someone different providing care.
We were relieved that while we take our vacation, they will approve certain people we stipulate to visit Joy on our behalf. That was making me feel uneasy for a little while yesterday, thinking that while we were gone, she would not see or hear anyone familiar, besides those who get to know her at TCC. I know that they would take great care of her if that were the case but it is different to hear some one you know and love.
She's definitely been sleeping today. After the first night in a new place, some medication time changes, ad the infusion medication, she was off to sleep pretty quickly. She's been snoozing for a few hours. Hopefully it doesn't throw off her second night in a new place. :)
Thanks for praying for us. I would appreciate your prayers for me as I transition to a few weeks without my girl at home. I shed some tears yesterday evening, missing her already. Ethan asked me last night, "Mom, will you miss giving Joy her medicine and feedings?' I said, "No, I will not miss that. This is the time of the year when my brain gets to rest from those." He seemed confused. "But", I said, "I will miss Joy's smiles and giggles, her voice when her movie is done and she's trying to let me know, her kisses at bedtime and trying to tell me she loves me, her working so hard to use her switch and trying to hold her head up, holding her, and praying with her when she goes to bed. I will miss that." I don't know if he understood but he seemed satisfied. Tears appeared when I just wrote that but I'm so glad she gets the opportunity to stay at TCC this summer. It is what we all need.