Joyanna had a better day today over all. She was much more alert this evening and had less facial tics. We are praying her body is transitioning to having this new enzyme and she will make a rebound this coming week. The second infusion is tomorrow and I just don't even know what to expect. I do know that God will be our strength if the unexpected continues. I also know that the medicine will be treated properly tomorrow! It's guaranteed.
We received the call today that Philip's private duty nursing was approved. Our friend, Elizabeth, will be hired at the beginning of next week and then we can get started. It's coming at such a great time with Joyanna now having infusions and other appointments. I am so excited that the Lord answered in this way and in this timing. I am excited for Philip because he'll get some individualized care that he really needs right now, and he'll be getting it from a good family friend. I'm excited for her too because she is ready for the change in her nursing career.
Joyanna had a better day today over all. She was much more alert this evening and had less facial tics. We are praying her body is transitioning to having this new enzyme and she will make a rebound this coming week. The second infusion is tomorrow and I just don't even know what to expect. I do know that God will be our strength if the unexpected continues. I also know that the medicine will be treated properly tomorrow! It's guaranteed. Comments are closed.
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Philip & Joyanna's Story
December 17, 2009 -
August 25, 2018 Philip's memorial slideshow and funeral service can be viewed by clicking on the "Philip" tab at the top of this page. You can read more about Joyanna's story by clicking on the "Joyanna" tab at the top of this page.
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March 2024
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