Well, surprisingly, Philip's levels were out of ketosis again this morning. The doctor admitted she had never seen that before. She's never seen a kid go in and out like he has. Usually there is a culprit, so we may have found one. When you go by a list of products to use, the manufacturer will sometimes change suddenly or slightly how they make the product. We checked the crystal light flavor additives we've been using and the ingredients may be affecting Philip. Most kids aren't affected by the small levels of trace carbs in these ingredients but perhaps Philip is. We will just have to be very vigilant in reading labels and looking for the ingredients to avoid. That is the only thing we can think of. We will choose new products today or cut them all out entirely to see what levels we can maintain. If something doesn't change throughout this day then she is just going to send us home, knowing we are committed to following the diet properly. They will follow us closely to make sure he doesn't go into acidosis. She thinks as soon as we figure this out, everything will go smoothly.
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Philip & Joyanna's Story
December 17, 2009 -
August 25, 2018 Philip's memorial slideshow and funeral service can be viewed by clicking on the "Philip" tab at the top of this page. You can read more about Joyanna's story by clicking on the "Joyanna" tab at the top of this page.
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