Weekends are busier for us so most of the time I won't include a post over the weekend. I heard from Philip's neurologist today. We will return to the dosage strength of the medicine we had tried lowering. We also have an appointment with him on Thursday. He and I both were glad that was already scheduled. He will do his regular check up exam and then decide what the next best step will be for his increased unsteadiness and seizures. At his speech therapy on Wednesday, his speech therapist will do a swallow study. She believes he is aspirating fluids at times and wants to perform these tests to try to figure out for sure. The main concern with this would be developing pneumonia. The neurologist is interested in the outcome of this test. Because of the imbalance issues, we will probably also be seeking out a physical therapist to help him. With these changes coming at us, sometimes its hard to know exactly what to do. The unknown is generally the hardest thing to fathom and usually the easiest thing to be afraid of. Fortunately for us, there are no unknowns to God. He has already shown us that He is guiding and providing. We know his grace and strength every day even though there may be hard times. Thankfully, Philip is happy and content for the most part :) and looking forward to his "Happy Birthday" next Tuesday. He sings "Happy to you" just to practice!
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Philip & Joyanna's Story
December 17, 2009 -
August 25, 2018 Philip's memorial slideshow and funeral service can be viewed by clicking on the "Philip" tab at the top of this page. You can read more about Joyanna's story by clicking on the "Joyanna" tab at the top of this page.
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March 2024
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