Philip's EEG reading was possibly better than last January's. It's so hard to tell with him because he has so many abnormalities in the EEG anyway. He's continued his almost predictable cycle of ups and downs. He'll have 2-3 good days and then 2-3 bad days right after, then that cycle over and over again. That seems to be how he's moving through life. Once again, I tend to travel up and down with him somewhat. I can get really discouraged on a bad day; he struggles to do everything, doesn't speak any words, has trouble sitting up and eating and is just out of it. Then on good days, he will say words and laugh, he eats better and plays, moving around on the floor even. Imagine living on a rollercoaster every day! That's why I pray and ask the Lord to help me stabilize my thoughts and emotions.
He's been on spring break this past week and it will continue through this next week. He has done much better at home each day than I thought. I thought he would be really grumpy about not going to school but he's been fine. He has completed his fasting this week well and seemed to benefit from both Tuesday and Friday.
At his therapy on Wednesday, I fed him a snack while his speech therapist listened to his swallowing. For the first time in a very long time, she could hear no gurgle, no wetness lingering. Everything sounded dry and functional. She was very excited and so was I. Praise the Lord! His OT, Mrs Laura, usually always gets him laughing and it was good to watch him enjoy his "exercises" with her. I'll try to post the video I took of him in the ball pit at therapy.
Monday night, I was able to attend an epilepsy support group and reconnected with the Brewsters. Their little guy has atonic seizures and they are planning to try the ketogenic diet. I am praying for them since we have had great success eliminating Philip's atonic seizures with the diet. Since atonic seizures are the only ones their son is having, I hope the diet will work to control them. Please pray for him too. We are trying to get some ketogenic support things started since the base of people here in Oklahoma is growing and it helps so much to talk with someone who understands.
Please pray we can maintain better days longer than 2-3 in a row. Pray Philip can finish transitioning through time change. Pray for progress no matter how small.