We met with Philip's neurologist today. He was reassured after seeing Philip. He had been thinking by our last conversation on the phone that he might have a malfunction with his shunt, causing problems with his hydrocephalus. There was no indication of that though, which means the seizure activity is probably responsible for some of the changes. Because of that, he is going to try to move up the EEG monitoring from April. Please pray that he can. It wouldn't necessarily give us all the answers but more information to help make decisions. We will also raise the dosage on his third medication. He is still taking a lower dosage of that particular one and it has had little negative side effects so it seems a good option to try to get more control of the seizures. Lastly, he suggested a helmet for Philip this time and put in the request. Before we left the clinic, Philip was fitted with his helmet and brought it home today. It will help him to avoid head injuries when falling. He doesn't like it right now but will get used to it, I'm sure. He won't have to wear it all the time. I'm sure we'll include a picture soon.
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Philip & Joyanna's Story
December 17, 2009 -
August 25, 2018 Philip's memorial slideshow and funeral service can be viewed by clicking on the "Philip" tab at the top of this page. You can read more about Joyanna's story by clicking on the "Joyanna" tab at the top of this page.
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March 2024
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