I feel like my mind is shifting gears as far as Joyanna is concerned. It’s almost like we have defeated the disease. It is stopped. Now we are rebuilding. I’m just thinking it’s like a brain injury someone may have received in a car accident or bad fall. She now must relearn everything she lost. I don’t know if the next weeks and months will bear that line of thinking out but it certainly helps me maintain my expectations.
Elizabeth is watching Philip today. It is technically her home orientation day but because it fell on an infusion day, we threw her to the wolves or wolf should I say. (It’s not really compatible to think of Philip as a wolf; Ethan maybe but not Philip.) But we have complete confidence in her. In fact, she has texted me and everything is going very smoothly. We officially start the nursing schedule on Monday. Then she will be with us every weekday. We will have other nurses on some weekends. Philip is doing pretty well over the past few days. We are working again on getting the medicine for him that we have tried to get since the beginning of the year. We will also raise seizure medication soon probably.
Thanks for praying. God is always, only good!
You Are Always Good
Looking back, I can see Your fingerprints
Upon my life, always seeking my best.
There were times when Your way would make no sense,
But as You said, You have never left.
Refrain:
You are always good, You are only good;
You are always good to me.
Though my eyes can’t see, help my heart believe
You are always, only good.
Looking in, I can see my frailty;
My sin is great, and my strength is so small.
Still You stay, and Your mercy shelters me;
You hold my hand, and You hear my call.
Looking up, I can see Your sympathy;
I doubt myself, but I’m sure of Your love.
Lavish grace was poured out at Calvary,
Securing me for our home above.
Text by Chris Anderson; Tune by Jonathan Hamilton