Philip loves buses, so I decided to make a bus cake for his birthday party. I saw one that looked relatively easy online and tried it. It did turn out cute! Philip loved it! I don't think he could quite figure out if he should play with it or eat it. He could tell it was a cake but it looked like a bus. You could almost see him trying to contemplate that one. I did ice a little cake with 4 candles for him to blow out, not knowing how much saliva we would be dealing with! He did good though, blowing out the first 3 in one try. He was excited (because everyone else was) when he got the last one blown out. We got Philip a die cast bus, that has pullback action and doors that open and close. Hours of entertainment for Philip! He figured out the pullback action way sooner than we thought he would. He usually only focuses on the concrete features and misses the abstract ones. It was a fun time with some family over, as well. The great news has to do with your prayers being answered. Thanks for praying! His extended EEG study has been moved from April to January 6. That's just a couple of weeks away!!! The Lord is good to give us this testing so soon. We will plan for Philip to be admitted into the hospital for 4-5 days. They will place probes on his skin around his head (they didn't shave his head last time). Each probe has a wire connected to it. They will then wrap up the top of his head sort of mummy style to help the probes stay on. Then each probe will monitor the electrical activity in his brain for up to 5 days, charting seizure activity in which regions and sections. We're not sure that it will take all 5 days but we are planning for that stay. From this information, the neurologist and probably epileptologist will be able to discern from which sections his seizures are coming, how often, the duration, etc. They can then make informed decisions about the best way to treat him to help the seizures to stop. Our neurologist will know from this if he should turn Philip's case completely over to a pediatric epileptologist, a doctor who specializes in seizure activity. We hope they can get the information they need to help him. We also hope to speak with specialists for our education on seizure types and understanding seizure activity. I'm so thankful we could have this testing done before our third baby comes--Lord willing in February. That would have been much more difficult logistically.
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Philip & Joyanna's Story
December 17, 2009 -
August 25, 2018 Philip's memorial slideshow and funeral service can be viewed by clicking on the "Philip" tab at the top of this page. You can read more about Joyanna's story by clicking on the "Joyanna" tab at the top of this page.
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March 2024
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