We arrived at the hospital at noon to be admitted. They were waiting for us on the 10th floor. So, within 3 hours, Philip had all the leads on his head, an IV inserted, medicine taken, lunch eaten, instructions given and we are settling in for however long we are here. We met the pediatric epileptologist covering his testing here and she seems to think she should get enough information and patterns even by tomorrow. He has enough seizures a day to gather the info they need. We are to press a button every time he has what we consider to be a seizure. They will review the video at that spot. From video footage and EEG reports they will be able to tell us what is a seizure for sure and what is not and what kind of seizure is happening. From this info, she said we should be able to come up with a plan to try to stop the seizures. She is leaning toward the diagnosis our neurologist had considered--epileptic encephalopathy. This means basically that he is having so many seizures that his brain cannot function correctly. This slows down his learning ability and sometimes causes regression in skills already learned. She said that she has had patients who, when they got their seizures under control, began to gain skills and learning development. Philip did not like getting the leads on his head (you can imagine) but you can see when it was all over he attempted a smile. He is trying to rest right now and that will help him quite a bit. Thanks for praying! Hopefully, it will be a much smoother process than even we expected, especially if we can go home in a couple of days.
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Philip & Joyanna's Story
December 17, 2009 -
August 25, 2018 Philip's memorial slideshow and funeral service can be viewed by clicking on the "Philip" tab at the top of this page. You can read more about Joyanna's story by clicking on the "Joyanna" tab at the top of this page.
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March 2024
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