Today was a different day all together. He only had one or two smaller seizures this morning. We've had snow here in OKC so my husband's work had delayed hours this morning. That meant Daddy was home for part of the morning and we had a good time singing many different songs and playing. At one point, Ben was just whistling a song and Philip began to fill in some words. That's evidence that his brain is engaged! He has a new-found love for the song, "Jingle Bells." 'Tis the season! He can't get most of the words out but he loves the "Hey!" at the end. He did seem to be on top of his game this morning. Now you might see why we just take each day as it comes because it can change from one to the next. We haven't yet figured out what brings these changes about. Philip still seems very unsteady in his balance; at first it didn't seem to affect him emotionally or mentally but now he seems more afraid to fall so he chooses to sit down and do most things. Unfortunately, that means he can't spin anymore. For those that know him, you know that's hard for Philip; he loves to spin. However, he falls most every time he tries these days. Please pray we will be able to figure out this newest development and take care of it.
Well, just as I thought yesterday, he woke up from his nap much better. It often happens that way. I'm so thankful for naps!!!! He didn't have many seizures yesterday evening. Philip loves to watch Wheel of Fortune, snuggled up in a blanket. Along with the beginning of the seizures in April, he seemed to experience a regression of cognitive skills. In the fall of 2012, he knew almost all of his letters by sight and numbers 1-9; now he's a little foggy on most of them. There are a few he still recognizes though and those are his favorite Wheel of Fortune letters. He'll see the A's come up and shout "A." He also is a mockingbird, technically called echolalia. So, he loves to repeat the letters as the contestants call them out. But, his all time favorite part of the show is when Vanna says, "Bye Bye" at the end. He waits for it. He says bye back and waves. That is so funny to us!
Today was a different day all together. He only had one or two smaller seizures this morning. We've had snow here in OKC so my husband's work had delayed hours this morning. That meant Daddy was home for part of the morning and we had a good time singing many different songs and playing. At one point, Ben was just whistling a song and Philip began to fill in some words. That's evidence that his brain is engaged! He has a new-found love for the song, "Jingle Bells." 'Tis the season! He can't get most of the words out but he loves the "Hey!" at the end. He did seem to be on top of his game this morning. Now you might see why we just take each day as it comes because it can change from one to the next. We haven't yet figured out what brings these changes about. Philip still seems very unsteady in his balance; at first it didn't seem to affect him emotionally or mentally but now he seems more afraid to fall so he chooses to sit down and do most things. Unfortunately, that means he can't spin anymore. For those that know him, you know that's hard for Philip; he loves to spin. However, he falls most every time he tries these days. Please pray we will be able to figure out this newest development and take care of it. Comments are closed.
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Philip & Joyanna's Story
December 17, 2009 -
August 25, 2018 Philip's memorial slideshow and funeral service can be viewed by clicking on the "Philip" tab at the top of this page. You can read more about Joyanna's story by clicking on the "Joyanna" tab at the top of this page.
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March 2024
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