Philip has experienced more seizures today (12/5) than normal. I used his rescue medication for the first time. It is a dissolvable pill we can place in Philip's cheek when he has a long seizure more than 3 minutes or clusters of seizures lasting more than 20 minutes. I'm not sure how that will affect him but he is napping now and sometimes the day can do a 360 after a nap. I am in regular communication with his neurosurgeon and am awaiting a callback from him. We'll talk about medication changes and what to do next. We recently tried lowering a medication dose for Philip because the current 3 medications seem to be making him very unsteady. We'll probably be changing that again because he has been having more seizures. On these days, he just likes to sit and look at books, watch a video or sit on the floor and play with his cars. He also likes to cuddle with Mama or Daddy more on these days and growl at Joyanna when she gets in his bubble.
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Philip & Joyanna's Story
December 17, 2009 -
August 25, 2018 Philip's memorial slideshow and funeral service can be viewed by clicking on the "Philip" tab at the top of this page. You can read more about Joyanna's story by clicking on the "Joyanna" tab at the top of this page.
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March 2024
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