We didn’t share yesterday but the infusion doctor actually told us that she is the first child to receive the infusion outside of BioMarin-funded trials or early access programs. We thought that was so exciting! We found out from our BioMarin rep that the 2nd little girl received her first infusion today.
We took this picture after the infusion had begun. We found this pillow and gave it to her yesterday. She loves Nemo and Dory and the pillow says, “An Adventure Awaits.” It was so fitting for yesterday. She looks zoned because she is...On "Little Bear" playing in front of her!
Our hearts are full at how much the God of all the universe has cared so specifically about our little family. And to think He really cares that much about every single soul. Wow! I can't quite fathom it but I can feel it every day. Praise the Lord!
Thanks for praying for us and rejoicing with us this week. An Adventure Awaits!