Philip seems to be settling in now. He is more like his calm, comfortable self each time I come to see him. Last week, the doctor requested a chest x-ray with a suspicion of pneumonia. There was enough evidence to suggest an early case of pneumonia only in the left lung. They started Philip on antibiotics and he has done so much better since that time. I’m glad they found it and are treating it so Philip can be comfortable again. This is his first time for pneumonia but it’s not surprising. We’ve expected it for a while now. It’s been a miracle that he hasn’t had it before. I just believe it was God’s protection while Philip was at home and couldn’t be diagnosed as quickly. The fevers he was having last week have mostly disappeared. He is not as agitated or tremory, having less seizures as well. I’m so thankful!
I wasn’t second guessing the move for him but I was concerned that Philip was more cognitively aware than we thought and was upset about his new environment and care. That doesn’t make mom’s heart rest easy. It seems now that the real issue was a physical one and not an emotional one. Phew!
Also, Joyanna has had a seemingly stronger week. She is really trying to sit up and hold her head up. She still fatigues quickly but you can really tell she is trying more. She doesn’t want to be still. She can roll over again when she is on the floor and scoot herself around in a circle by kicking and pushing with her feet. A couple of weeks ago in speech therapy she purposely moved her arm to touch her ipad with a communication app. She did it 3 or 4 times that day but has done it a few times since then. We are not pushing her to use it daily but just allowing her to gain strength and reacquaint herself with the concept. She doesn’t always make it to touch the screen but shows clear intent to move her arm when trying. Her therapist and I went crazy celebrating those intentional moves on her part. She’s also moving her lips better, more in feeding therapy than in making words. We will take any progress the Lord will allow her to have. I’ve been specifically praying that if He would, He will allow her to be able to sit up, hold her head up, and use her hands again.
I hope to update again on Wednesday during Joy’s infusion. Thanks for checking in to see how we’re doing.